Update – How my life has changed.
A brief update
Since May 2017 I have suffered chronic pain and illness, my story is here if you are new to my blog and would like to have a read.
My life was well documented through my blog then in November last year I completely stopped blogging. So here is an update into how my life has changed over the last 6 months.
To be perfectly honest, life has been such a struggle since then, I have struggled to mentally come to terms with my illness and disability. Although my physical health has actually slightly improved, which is great, since my last post I’ve also lost my job, I’ve had to get extra help with childcare as I was unable, my wife has dropped to 3 days at work to help out at home more, I’ve had doctors wash their hands of me telling me that I might have to “accept that I’ll never get better” and to this day I still don’t have any explanation as to why I’m so ill and in so much pain.
My life now
As I mentioned I’ve really struggled mentally to come to terms with everything that has happened and how my life has changed. I’ve had days where my mental health has been at an all time low and I’ve done some silly things to myself in a cry for help. I might shed more light on that in a separate post.
I’m now under the care of a lovely NHS doctor who has taken my case very seriously. He has explained what he thinks is happening and has referred me for numerous tests over the last few months. These tests have all came back “normal”, which is great, however, it doesn’t help me understand what or why this is happening.
My day to day life is so different right now. Some days I’m able to do lots whereas other days I’m not able to do anything. I’m so grateful for all the better days I’m having and we’ve even recently been able to go on our first family holiday and get family pictures done.
The next few months
Over the next few days and months I will have appointments with a dietician for the first time, plus the pain management team, a psychologists and my GI consultant for routine appointments.
I’m also hoping to try get my mental health under control. With this being all over the place on top of my illness I’m completely exhausted and usually fast asleep by 7pm.
Anyway that’s all from me just now, just wanted to update everyone who has been asking after me. I really appreciate all the messages and kind words from you all.
This real life Dad